Join Nikki Lilly – campaigner, YouTuber and TV presenter – and wear your support for this year’s Jeans for Genes appeal.
As Nikki says “As someone living with a genetic disorder, I know just how difficult it can be at times, which is why it is so important to have an amazing organisation like Jeans for Genes that gives a voice to those living with genetic disorders, while also providing support to those affected and their families.
Nikki Christou Aka Nikki Lilly was born in London her parents are Cypriot .Nikki Lilly was diagnosed with arteriovenous malformation at six years old, a life-threatening medical condition, which has resulted in a visible difference to her physical appearance. She has positioned herself as a media figure with the goal of spreading hope and positivity, using her profile to raise awareness of the condition while inspiring young audiences to stand up against bullying and be proud of their differences.has become a social media sensation and has been honoured with the following:
- The WellChild Award for Courage by Prince Harry in 2013.
- The Princess Diana Award Exceptional Bravery 2014.
- The Pride of Britain Award for Child of Courage 2016.
- CBBC award winning program “My Life Born to Vlog”
- Nominated for a Bafta
- 2018 Emmy Award for best factual program
- Japan Grand Prix Award
Jeans for Genes brings together young people by creating a community which can meet, understand and listen to one another – something which they often struggle with and don’t have otherwise. The positive impact that Jeans for Genes has can be truly life-changing and can immensely improve the quality of life of someone living with a genetic disorder. But this isn’t possible without your help and vital fundraising, so please join us and make a difference.”
Every purchase of one of our branded colour T-shirts comes with a built-in donation – meaning that your shopping can help fund counselling, clinical nurses and critical services for individuals and their families in the UK who are living with a genetic disorder.
Available in yellow, bright blue (as modelled by Nikki here) and navy, show your support and buy yours today . Sign up for a free fundraising pack, pick a day for your workplace or school to hold a Jeans for Genes Day (Monday 13 – Sunday 19 September) and show that T-shirt off! Because kindness never goes out of style.